(no subject)

[llywela]

My sister saw the neurologist again yesterday and she and her husband both shouted at the woman, who basically said, "Oh dear, I think this might be worse than I realised," and decided to send Deb for more of the tests she's already had and told her to come back again in four months (which seems a long time, but is apparently unheard of for a doctor with a waiting list of eight months) and offered all kinds of scary possibilities for what the problem might be, such as early onset Alzheimers, brain tumour, stroke, or that old chestnut, meningitis.

Deb is working full time again, back teaching, and the neurologist didn't think she should be, but without an official diagnosis, what can she do? She's trying to get on with her life. It's been almost two years now. Two years of permanent migraine, memory loss and visual impairment. Ray does most of the cooking now because Deb forgets stupid things, like what kind of food she likes and how to cook it. She's coping in the classroom but is struggling to drive now that the nights and mornings are so dark. And she is in pain all the time.

Two years. You'd think something could have been done before now.

Where's House when we need him?

Comments

[francy-m79.livejournal.com]

:( That's so scary!! I would freak out and lose my effing mind if I had to go through something like that. Your sis is a strong woman!! I hope they find out what's wrong sooner than later.

[(Anonymous)]

I'm so sorry to hear things are no better and still no proper diagnosis. It really shouldn't be like this.

Carol

[ehlwyen.livejournal.com]

I'm so sad for Deb. It feels like forever since this started. Her symptoms are so strange and frightening. It is pathetically ridiculous that it takes 4-8 months for a followup when in a diagnostic stage of an illness. And this, on top of all the other horror show treatment she has received along the way like doctors stopping medication because they lost test results. The feeling that no doctors seem to care about pursuing a diagnosis really makes a horrible situaton all the worse.

Many thoughts and prayers for Deb *hugs*

[thisbluespirit]

That's awful. :-/ I do hope they can find something - though the time scale is just useless.