His mum and dad have coped amazingly well - especially since Gareth lost his father just a couple of months ago, so has had that to deal with as well as Evan's condition. And they've been lucky that Evan is such a placid and happy baby, that his development wasn't affected by the condition. They'd been told, though, that the surgery had to take place before he was a year old, because after that point he would start to deteriorate, as his brain wouldn't have room to grow. Just so thankful it didn't come to that, that he's doing well.